Innovation and Integration: The Future of Research Subject Advocacy Web-Conference

December 11, 2008, 1:00 -4:00 p.m. EST

• Agenda (MS Word Document)

• Audio of entire conference (3 hours - 44 MB) - Wav File

• All files (Audio, Presentations, and Agenda) in Zip file (40 MB).

Please click on highlighted presentation topic or presenter to open or download PowerPoint file:

• 1:00 – 1:10      Welcome, Introduction, and Conference Logistics

  • Wajeeh Bajwa  PhD, President, SRSA, University of Florida

  • Laurie Shaker-Irwin PhD, M.S., President-Elect, SRSA, UCLA

• 1:10 – 1:30      Re-inventing the RSA’s relationship with the GCRC post-CTSA, Jane Alexander BSEd, CCRC, University of Pittsburgh

• 1:30 – 1:50      Research Integrity and Participant Advocacy, Henry Robert Kolb RN, BS, CCRC, University of Florida

• 1:50 – 2:20      Patient Advocates in Research, Special Guest: Rebecca Dresser JD, Daniel Noyes Kirby Professor of Law, Professor of Ethics in Medicine, Washington University in St. Louis

• 2:20 – 2:40    Friendly Audits:  ITHS Regulatory Consultation Visit Program, Amanda Vick, University of Washington  

• 2:40 – 3:00    Community Engagement Discussion Research Centers in Minority Institutions (RCMI): Translational Research Network (RTRN)

  • Sharon Malehorn, MD,

  • Zoe Hammatt, JD, MPhil, University of Hawaii, 

  • Winifred C. Smith, MPH Morehouse School of Medicine  

  • Donna Antoine-LaVigne, PhD, MPH, MSEd, Jackson Heart Study, Jackson, Mississippi  

• 3:00 – 3:50      Clinical and Translational Science Award Panel Discussion,

  •  Moderator: Rhonda Kost, MD Rockefeller University

  • Special Guest: Elaine Collier, MD, National Center for Research Resources   NCRR/

  • RSA Working Group Recommendations Panelists:   

    • Kathryn Schuff, MD - Oregon Health & Science University

    • Michelle Jenkerson, BS,RN,RRT,CCRC - Washington University

    • Gary Toback, MD, PhD - University of Chicago

    • Eric Rubinstein, JD, MPH - University of Rochester

    • Nancy Needler, BS, CCRC - University of Rochester